Each year, the Epilepsy Tasmania is contacted by hundreds of people, requesting information, support and advice about epilepsy. We are working within a holistic framework to enhance the quality of life for people living with epilepsy, and to improve community awareness, understanding and acceptance to reduce stigma and create a more welcoming and inclusive society.
Our services include the following which can be accessed over the phone, in person (appointment), via electronic media, referrals from other health professionals and the community at large.
- Provision of up-to-date information and resources on all aspects of living with epilepsy including fact sheets, brochures, DVD’s, and access to an epilepsy library to obtain journal articles and latest research on epilepsy.
- Telephone and face to face support from epilepsy educators who understand epilepsy as a medical condition and how it affects physical, emotional, social and spiritual wellbeing and refer on to relevant agencies for additional assistance.
- Assist the individual with completing an epilepsy management plan and provision of seizure first aid to help people manage their own epilepsy and assist in educating their support network such as family, friends etc.
- Individual and systemic advocacy for people living with epilepsy who are coping with prejudice and misunderstandings.
- Epilepsy clinic and hospital visits providing integrated advice and support in partnership with neurologists who specialise in epilepsy
- Facilitate support groups that provide an opportunity to talk with someone in the same situation, to share experiences, problems, ideas in learning to cope with epilepsy and enjoy shared activities in the community and create social networks
- Provide non accredited education for epilepsy care and first aid awareness in schools, tertiary institutions, medical and allied health professionals, government departments and across the full spectrum of the community
- Provide training in emergency management of seizures for families, schools, tertiary institutions, medical and allied health professionals, and disability support workers who are caring for a person who has been prescribed midazelom to control seizures.
- Community awareness program incorporating understanding and managing epilepsy workshops held in regional areas of Tasmania to raise awareness and understanding about epilepsy and seizure first aid.
For additional information, or to speak to an epilepsy educator please call 63 317881
EPILEPSY HELP LINE: 1300 852 853
